We invite:
Researchers, clinicians, industry partners, and institutions to share their datasets or metadata descriptions under terms that suit your data-sharing policies. The data sharing options could include:
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Public Access:
Make your dataset or metadata openly available for download and citation.
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Controlled Access:
Define specific terms and conditions for data use, ensuring compliance with ethical and legal requirements.
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Metadata Only:
Let others know your dataset exists even if full sharing isn’t possible now.
What you can share:
- Full datasets (raw or processed)
- Metadata descriptions for unpublished or controlled-access datasets
- Associated documentation (protocols, data dictionaries, etc.)
How to Contribute:
- Register to the Duchenne Data Repository.
- Upload your files or metadata form.
- Choose your sharing level.
- Confirm data licensing and attribution preferences.
By contributing, you help:
- Enable data reuse across the research community
- Foster collaboration and transparency
- Accelerate discoveries and therapeutic advancements
Share your data. Advance discovery. Empower the community.